Spina Bifida Association of Oregon, Support Group

Just a little over three years ago we were thrown into a world we had no intention of visiting, when we received a diagnosis of Spina Bifida for our unborn daughter.  Shortly after her birth we began to seek out other families affected by Spina Bifida in hopes of finding a network of support within Oregon.  Surprisingly, we realized that such a network was non-existent.  It was at that point we felt called to change that for future parents of children born with Spina Bifida  and individuals already living with it.  Over two years ago we began laying the ground work to start the Spina Bifida Association of Oregon, Support Group with the vision that no new parent of a child born with Spina Bifida would feel the loneliness and isolation we felt bringing our precious little one into the world.  

Fast forward three years and we now have the new Spina Bifida Association of Oregon, Support Group.   We are working under the auspices of the Spina Bifida Association to provide support for the families and individuals in and around the state of Oregon living with Spina Bifida.  Our vision is to form a network throughout the state of Oregon in an effort to provide resource materials, support, and educational opportunities for those affected by Spina Bifida. 

We are excited about this group and look forward to all that we are going to accomplish in the coming years.  It is our hope that you will come along side us.  If you are interested in being a part of this group please contact us through the form on this website and remember to check the website frequently for changes and updates.  We thank you in advance for your support and look forward to meeting each and every one of you.  With your help, we can make a difference!

Sincerely,

Bill and Jill Pfankuch