Spina Bifida Association of Oregon, Support Group

Making a difference one person at a time!

spinabifidaassocoregon

spinabifidaassocoregon
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Joined Feb 19 2009
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Salem, OR
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Gaviiiiin
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Spina Bifida Association of Oregon, Support Group

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About Me

We are the parents of a precious three year old daughter.  Emmy has Mylomeningocele (L3-L5).  She has shunted hydrocephalus and a neurogenic bladder.  She wheels and walks with RGO's and a walker. 



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3 Comments

Gaviiiiin
Reply Gaviiiiin
02:37 PM on May 23, 2009
your daughter is such a cutie!
Michele
Reply Michele
03:21 PM on February 20, 2009
Hello Pfankuch family!!
kinfam5@msn.com
Reply kinfam5@msn.com
01:58 PM on February 20, 2009
I am Mylomeningocele (L1-S5) with neurogenic bladder. No shunt. Have had over 60+ surgeries in my lifetime. Your daughter is beautiful. If you have any questions, I would be happy to offer my experiences.

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